Analysis of postsurgical quality of life in children with functional single ventricle by using pediatric quality of life inventory
WANG Tingting1, YE Xiuxia2, CHEN Weimin1, HE Yongrui1, QIN Rong1, ZHOU Zhenfa1, HONG Haifa1
1. Department of Thoracic and Cardiovascular Surgery, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China; 2. Departmont of Neonatology, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China
Abstract：Objective To assess postsurgical quality of life (QoL) in children with functional single ventricle (FSV). Methods In this cross-sectional study, the Chinese version of the pediatric quality of life inventory (PedsQL) 4.0 generic core scale was used to assess postsurgical QoL of 77 children with FSV (aged 5-12 years) and their parents. Data of 1 583 health children were collected as control. The PedsQL scores completed by children with FSV and their parents were compared with healthy controls. Pearson correlation and intra-class correlation coefficient were calculated to analyze the correlation and agreement between the child self-report and parent proxy-report for children with FSV (aged 5-7 years and aged 8-12 years). Results The PedsQL scores of children with FSV were significantly lower than those of healthy controls in child self-report and parent proxy-report (P＜0.05). For patients aged 5－7 years, the agreement between child self-report and parent proxy-report was great and the relationship between them was a strong correlation in total score, emotional functioning, social functioning, and school functioning. However, poor agreement and correlation between child self-report and parent proxy-report were found in all domains for FSV children aged 8－12 years. Conclusion Children with FSV have significantly lower postsurgical QoL than healthy controls and interventions targeting both physical and psychosocial domains are needed. When patients cannot complete child self-report and parent proxy-report is adopted, doctors should consider the effect of age on the agreement between them.
王婷婷，叶秀霞，陈伟敏，和永瑞，秦 荣，周振发，洪海筏. 采用儿童生存质量测定量表分析功能性单心室术后患儿的生存质量[J]. 教育生物学杂志, 2021, 9(2): 114-.
WANG Tingting, YE Xiuxia, CHEN Weimin, HE Yongrui, QIN Rong, ZHOU Zhenfa, HONG Haifa. Analysis of postsurgical quality of life in children with functional single ventricle by using pediatric quality of life inventory. JOURNAL OF BIO-EDUCATION, 2021, 9(2): 114-.
