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| Qualitative study on cognitive experience and needs of family members on cardiac rehabilitation after surgery of children with congenital heart disease |
| WANG Qiuping1, YANG Ling1, YU Qun2, WU Yurong1, WANG Jun1, XU Zhenrong3 |
1. Pediatric Cardiac Ward, Xinhua Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai 200092, China; 2. Nursing Department, Xinhua Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai 200092, China; 3. The Second Geriatrics Ward, Xinhua Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai 200092, China |
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Abstract Objective To understand the real experience of family members’ cognition and needs of cardiac rehabilitation after surgery of children with congenital heart disease. Methods From September to November 2021 , 13 family members of hospitalized children with congenital heart disease were selected to conduct semi-structured in-depth interviews by the purposeful sampling method, and were recorded. Then, the Colaizzi 7 -step analysis method was used to analyze the interview data and summarize the themes. Results A total of 2 categories and 8 themes were summarized. The first category was family members having limited awareness of cardiac rehabilitation, including lack of understanding of the content of cardiac rehabilitation, limited way to understand cardiac rehabilitation knowledge, and weak awareness of postoperative cardiac rehabilitation in children but positive attitude. The second category was family members having diverse needs for cardiac rehabilitation, including the disease knowledge and information acquisition needs, postoperative care and coping skills needs, professional and non-professional social support needs, psychological comfort and counseling needs, and continuous nursing scene needs. Conclusion Medical staff should enhance the awareness of family members of children with congenital heart disease on cardiac rehabilitation, expand their access to authoritative knowledge, and provide multi-cooperative, diversified, and targeted intervention methods to promote the rehabilitation of children with congenital heart disease.
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