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| Family related factors in diagnosis and treatment of autism spectrum disorders in Chongqing |
| YANG Ting, ZHU Jiang, GUO Min, LAI Xi, LI Yuanyuan, TANG Ting, LI Qiu, CHEN Jie, LI Tingyu |
| Children Nutrition Research Center, Children's Hospital of Chongqing Medical Universiticy, Ministry of Education Key Laboratory of Child Development and Disorders, China International Science and Technology Cooperation Base of Child Development and Critical Disorder, Chongqing Key Laboratory of Pediatrics, Laboratory of Child Nutrition and Health, Chongqing 400014, China |
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Abstract Objective To investigate the status of family, disease burden and patient demand for autism spectrum disorder (ASD) children, and to make a proposal for improving health care system and society supporting for the families with autism children. Methods Totally 205 children with ASD in specific educational institutions of Chongqing were enrolled in this study from March 2015 to May 2017.The information about the family information, perinatal history, disease burden, and patient demand was collected by using questionnaires. Results Totally 205 children with ASD were enrolled in this study with the male to female ratio of 7.2∶1(180/25). The main initial diagnostic age of the children with ASD was 24~35 months. The degree of mother received education, marital status, number of children (single-child or not), family structure and family relationships affected the initial diagnostic age. About 58.0% of the children with ASD received formal treatment within 6 months from the initial diagnosis to autism diagnosis. Further, family relationship is a factor influencing the length of intervention. Conclusion For early diagnosis and treatment, decision makers need to increase government support, increase publicity of disease screening and prevention knowledge, strengthen screening for high-risk children, and establish a stable and effective rehabilitation network for autistic children. Social and community forces are also needed to support families with ASD children, both materially and spiritually.
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